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got another spam message today…so frustrating, ya get all excited thinking somebody actually sent ya a message and then such letdown! ugh…so send me real messages! ;)
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“Busy, busy, busy” is a quote from Kurt Vonnegut’s Cat’s Cradle. It’s “what Bokononists whisper whenever we think of how complicated and unpredictable the machinery of life really is.” I’m 23 and have fibromyalgia for 3 years. I’ve felt sorry for myself…I’ve been angry and sad and defeated. Life is unpredictable, but it’s the only one we have. So even if we’re not where we think we should be or in pain or things don’t go according to plan, accept the things you can’t control and be strong enough to keep trying for the things you desire. Also, the significance of the placement is it is down my “pain line” (the area that causes me the most pain is a “line” starting at my lower back through my hips down my thighs).
Done by Omar at Rising Dragon Tattoo.
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the complexity of fibromyalgia
(Source: homepages.sover.net, via lifewithautoimmune)
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This is One Petition You NEED to Sign if you are female and suffering from chronic pain or a chronic illness
Stop and take a moment of your time to sign this. This is one petition that needs your signature. For anyone who has ever been called a hypochondriac when they were suffering, for anyone whose pain has been deemed illegitimate and invalid, for any woman who has ever been told they are hysterical, hormonal, or crazy — this petition is for you. Women, sign this to make your voice heard. Men, sign this and show your support for your sister, your mother, girlfriend, peer, whomever.An excerpt:
“To: The Medical Community of the United States
From: Women In PainStop the bias which prevents the ethical and equal treatment of women with chronic pain diseases – now. Women in this country have for years suffered from a destructive bias and prejudice by the medical establishment when it comes to the assessment and treatment of their chronic pain conditions.
All too often, their pain reports are discounted as “emotional,” psychogenic or “all in their head,” and therefore, not real. Women for their complaints of chronic pain are often prescribed sedatives to “calm their nerves” while their male counterparts are prescribed painkillers…”
(via lifewithautoimmune)
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imitrex nasal sprays…a no go…they work pretty good…cuz it’s imitrex, but its the delivery method i’m not a fan of..when i’m having a migraine and already at the point of extreme pain to the point of nausea the last thing I want is some nasty ass medicine slowly dripping down my throat, causing me to actually loose my cookies! They make them in an epipen type dose, and honestly i have nothing against those, but i t’s think the physician was trying to be nice by giving me the nasal spray but I’ve always had an aversion to nasal sprays but was willing to give this one a try…i’ll try one more time but thats it….the only thing about this med is that it shoots my migraine through the roof and then it settles out…but at least it settles out right?
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happy to report that i’m not currently having any lip tinglys from the topamax…unfortunately i had to go to the immediate care center earlier to get a toradol shot because my gp didn’t give me any intervention meds for my migranes….
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Response to: A Thought: @spoonsforlife
I’m starting to get used to it but it’s just so incredibly odd, but if it gets rid of my migraines I think i can live with it as long as it doesn’t get much worse, I’ve experienced the whole tingly hands and feet thing before with my fibro, and also it’s easy for them to fall asleep so those aren’t odd sensations for me just not for 24/7…I haven’t had any taste issues, yet, hopefully I won’t have any, but honestly if i have to stop drinking sodas because they taste funny to get rid of these stupid migranes i’m ok with it, i’ll loose weight and get rid of these mosters so it’s 2 birds with one stone! Hoping for the best on this week at 50 mg as it’s also the first week of classes for me! Good luck to you too! Let me know how it gos!
I’m on week 2 of Topamax too and I start on 50mg and yes the tingly lips is normal and the tingly hands and feet and everything else that does not feel normal. I cant even drink soda’s because they taste funny so I have been drinking everything except. I get the Topamax dosage up’d next week and I hope it isn’t too much for me to handle because I am also getting on anxiety meds. Good luck with being on yours! =)
so now i’m on topamax…on week two, just uped the dose from 25 to 50 mg, not too sure how i feel about it so far, have the whole tingly lips senstation again…kinda concerned honestly, this isn’t normal right? Should I just keep taking it, I really want it to work, and honestly I could live with the whole tingly lips thing, right?
(via lostinaseaoffaces)
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Highschool. My sophomore year. So back in 06-07ish. So bout 5 years now…craziness.
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so now i’m on topamax…on week two, just uped the dose from 25 to 50 mg, not too sure how i feel about it so far, have the whole tingly lips senstation again…kinda concerned honestly, this isn’t normal right? Should I just keep taking it, I really want it to work, and honestly I could live with the whole tingly lips thing, right?
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New medication on the not to take list…RELPAX
Took the first 40mg dose, and it had no effect on my migrane so I took the 2nd dose two hours later. Only upon taking the second dose, my lips and throat became numb, I became extremely dizzy, and my arms became tingly, super sensitive, and oddly heavy….my physician told me not to take it for 5 days and to try it again because the side effects I was having weren’t common, and to see if it was coincidence/other factors. Well when improvement to deal with all that again…
